Lizzy is a very happy girl who brings joy to all who meet her. She loves to dance. Lizzy is almost 14 years old now and she was born with Down Syndrome, Tracheomalacia and (PDA) Patent Ductus Arteriosus. About the age of 4 the PDA closed on its own. But unfortunately, her Tracheomalacia has only progressively gotten worse. Lizzy’s Chattanooga medical team, have referred Lizzy to Boston Children’s Hospital for a surgery called Posterior Tracheopexy. This surgery is so specialized that there is only one team and one hospital in the U.S. that performs it. Lizzy must go to Boston for her to be well. It will require a minimum of three visits over several months or so. Both parents will be traveling with her to be there for all necessary procedures and treatments. The first trip to Boston is the end of July 2019.
Her parents have applied for all the housing and free/medical flight options that we know about and they are all booked at this point, so they are having to go through standard flight and hotel booking. We are hoping for accommodations close enough to the hospital that they can take public transportation for a couple of the trips, however, after surgery that will not be an option and they will need to rent a vehicle for her protection against jarring around, someone bumping into her after such a major surgery and her moving very slowly. We don’t really know all the costs at this point. We know that there will also be additional unexpected costs that cannot be planned for as well as lost wages for her dad who is self-employed. Her insurance will only pay 80% of this surgery so they will also have to pay for all the medical care copays out of pocket as well. This has been so unexpected for them and we are looking for options to help.
Ways you can help Team Lizzy
Please consider donating to help offset the costs to this wonderful family. You can mail your Tax Deductible donation check, made payable to Christ First Church to PO Box 2398, Ft. Oglethorpe, GA 30742, who will distrubute it to the family.
Or you can use the Givelify App to help steamline this process
Bid on our Auction Items – Click Here
Please plan to attend our 1st Annual Hope Kids Kingdom Fest @ Yates Farm on July 27th from 10am – 8pm
Money raised will be used by Hope Kids to help families affected by special needs throughout the year, with this years focus being Team Lizzy.
Click Flyer Above For More Details
Click Image Above to Download Vendor Form
Click Image Above to Download Sponsor Form
Click Image Above to Download Silent Auction Donation Form
Click Here to buy your ticket in advance, pay for vendor fee or volunteer